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This toolkit provides an improved framework for engaging community leaders, clinicians, families, and Title V directors to assist children and youth with special health care needs (CSHCN). The materials included in this toolkit were collected by learning collaboratives that were funded by the Health Resources and Services Administration's Maternal and Child Health Bureau. Each collaborative identified and tested a number of tools that families and providers could use to support quality improvement within systems of care for CSHCNs. Examples of communication tools include the Family Newborn Hearing Screening Roadmap, care notebooks, and a pictorial description of seizures.